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I remember thinking, How astonishing that my body would betray itself in this way. No one knows precisely how things go haywire, but a plausible theory is that while my antibodies quickly recognized the coronavirus spike protein represented by the vaccine, a few rogue soldiers looked around further and decided that something similar appeared to be on the myelin sheaths that coat my nerves like insulation around an electrical wire. GBS is also a known risk associated with vaccines, including those for swine flu back in the 1970s, seasonal flu, rabies - and now, Johnson & Johnson’s Janssen viral vector COVID vaccine. With nearly 1 in 4 eligible Americans still not getting the vaccine, I dared not add to the fray.
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I’m normally a serial social media poster yet I’ve been reluctant to talk about my experience because the dialogue about vaccines has become so super-charged and twisted. Though I wasn’t alone, my journey felt particularly lonely. GBS is an extraordinary physical and mental challenge, afflicting up to 6,000 people annually in the United States for reasons that are still not fully understood. I got the shot at Boston Medical Center on April 3, and felt the onset of symptoms two weeks later.
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About 100 of the roughly 12.8 million or so who had received the vaccine developed GBS afterward - such a small number that the FDA said the benefits of the vaccine outweigh any risks - but I was part of that extremely unlucky cohort. In July, the Food and Drug Administration added a warning to Johnson & Johnson’s COVID vaccine, suggesting it appeared to trigger this unintended autoimmune response in some people. A largely obscure affliction written about mostly in medical journals, GBS might ring a bell in this second year of the pandemic.